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Why

Whether or not to disclose an autism diagnosis is an individual decision. Disclosure can lead to positive or negative influences on an individual’s day-to-day life and may affect their relationships.

There is a lot of research on disclosure for Autistic individuals; however, the information is not easy to understand or use when making personal decisions about whether or not to disclose.

There is a need to provide more objective information regarding what happens when someone discloses to assist others in making an informed decision about disclosure in their own lives.

What happens when an individual discloses their autism? How can this information help individuals make informed decisions about their own disclosure?

The research

In phase 1 of the study, an anonymous international online survey will be completed by Autistic adults and/or their parents/carers to investigate their experiences and perspectives on disclosing autism. Participants will be invited to take part in phase 2 of the study, which involves completing daily and weekly surveys about their disclosure experiences. Participants can choose to participate in phase 1 only.

Making a difference

This is the first research study to investigate what exactly happens when people choose to disclose their autism. Findings from this study may be useful when Autistic individuals make informed decisions about whether or not to disclose in their own lives.

Research team

Dr Abbey Love, Lead Researcher ARCAP

Vicki Gibbs, ARCAP

Dr Ru Ying Cai, ARCAP

Started

2020

Ends

2021

Funding

Autism Spectrum Australia (Aspect)

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