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What is this research study about?

Researchers at the UNSW and the Cooperative Research Centre for Living with Autism (Autism CRC) are seeking volunteer research participants to take part in a nationwide questionnaire-based research study which aims to improve our understanding life in adulthood for people on the autism spectrum.

The study is called the Australian Longitudinal Study of Adults with Autism Spectrum Disorders (ALSAA).

The study is seeking the participation of adults who are on the autism spectrum, their family/carers, and also adults who are not on the autism spectrum but would like to help those who are.

Why should I help?

You will not be paid for taking part in this study. However, you will be making a highly valuable contribution in furthering knowledge and contributing to work which aims to improve the lives of adults with autism.

Who can take part?

The researchers are looking for a range of people to take part in this study. This includes:

  • any adult with autism who is 25 years and older, and/or their carers/family members. We especially need more adults with autism and intellectual disability to participate, or their support person to participate on their behalf.
  • any adult who is not on the autism spectrum and who would like to do something to help those who are – especially if you are a male.

Who is conducting this study?

The Cooperative Research Centre for Living with Autism (Autism CRC) is the world’s first cooperative research effort focused on autism across the lifespan. This study is funded by the Autism CRC and conducted by researchers from the Autism CRC and The Department of Developmental Disability Neuropsychiatry (3DN), University New South Wales (UNSW).

What will I be asked to do?

If you decide to take part, you will be asked to complete a questionnaire. You can do this either online or via a paper copy. The questions will be about many aspects of life including mental and physical health, employment and other day occupations, behaviour, emotions, coping, memory, friendships and health service utilisation.

About two years after you complete the first questionnaire, you will also be asked if you would like to complete a second questionnaire.

When and where?

You can take part from the comfort of your home or computer.

The time it will take to complete the questionnaires may vary greatly, but the majority may take between 2 to 3 hours. You don’t have to do it all at once.

To find out more about the study and register to participate:

Please feel free to forward this information to others who might also be interested in participating.

Phone us to discuss how we can help you.

Call 1800 277 328

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